Scuba Strong: Back to Life!

Today was Steve's last day of radiation and he couldn't be more excited to finally be done. By this time next week most of the side effects from the radiation should be subsiding. Overall Steve did really well through radiation. The first two weeks he didn't have any side effects then the last week and a half he started to have discomfort in his throat, heartburn, and tender skin (like having a sunburn) and the fatigue was starting to set in. During this past month I kept thinking I needed to update the blog but really there wasn't much to update and life has been busy and FUN so I decided to wait until he was through.
Since Steve's surgery in February he has been out of work because he wasn't released to return until four weeks post-surgery then he started radiation. Also these past twelve days his sister and her kids came to visit over spring break and we had a great time hang out with them. I have to say I LOVE having him home all day with me! He is going back part time this week and next week and I am sad.
Next on the agenda:
*May 11- he will have a follow up appointment with the radiation oncologist.
*June 6- he will have another follow up appointment with his medical oncologist and probably another PET scan
*June 30- Celebration- stay tuned for further details!
*October 13- Light the Night Walk for the Leukemia & Lymphoma Society-further details to come

Now back to enjoying:

New trailer and yes we have already been camping this year and LOVED IT!

And especially these two little stinkers....LOVE THEM!

Brief history for newbies...

In July 2011 I was diagnosed with Hodgkin's Lymphoma Stage IIB Bulky at the age of 32. August 10, 2011 I received my first of twelve doses of ABVD chemotherapy (6 cycles of chemotherapy = 12 doses). After 4 doses I had a clean PET scan and it was decided to drop down to 8 doses instead of 12 then after 8 doses prior to starting radiation I had another PET scan and there was metabolic uptake which lead the doctors to believe there may be disease still residing in my chest cavity so we continued chemotherapy for the full 12 doses. After completing chemotherapy I had another PET scan prior to starting radiation and the metabolic uptake increased even more than the previous scan and it also showed it had possibly spread to my T6 vertebrae. Next I had a MRI and surgery by a Thoracic Surgeon that confirmed by a biopsy of the tumor, lymph nodes and a cyst on my heart sac that everything was
benign. NO CANCER! I have now gone on and completed 18 rounds of radiation and I am in REMISSION! (4/9/2012)

If you or a loved one has recently been diagnosed with Hodgkin's Lymphoma I hope this site gives you hope that you to can beat this! I will be updating as I reach new milestones post treatment and until the day (5 years from now) I can proudly say I am CURED!

1 comment:

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Back to Life!

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